Claire Eleanor. This is my beautiful daughter’s name. Let me tell you a little about her. She is almost 5 years old and loves to ride her bike, play with her baby dolls as well as her 3 brothers and LOVES to eat the marshmallows out of Lucky Charms cereal!
Claire was born with a condition called craniosynostosis. Her sagittal suture had fused together in the womb. To my understanding this is the most common type of craniosynostosis. Her head was growing but could not expand, therefore leaving her with a “football” shaped head. It was long from front to back and narrow from ear to ear. We were told she would need surgery but it was not a life threatening condition. Still, very scary stuff!
At the time of Claire’s diagnosis we knew nothing about her condition except for the little that the pediatrician had told us and what we had researched on our own on the internet. Through a miracle of events we were introduced to Dr. Renatta Osterdock. My husband Dan and I and little Claire flew to Colorado to have a consultation with Dr. Osterdock. We were told that Claire did in fact have craniosynostosis, but that her condition would not put her brain or development at risk. But with that being said, if not taken care of, it could affect her psychologically because of the abnormal way her head would continue to grow. Before we left we scheduled Claire’s surgery and were set to return a few months later. In between the time of our consult and the actual surgery date Dr. Osterdock and her team were always available to answer any questions we had and to calm any fears.
About 2 months later we flew back to Colorado for Claire’s surgery.
About a month later we flew back to Colorado for a follow up appointment to make sure her sagittal suture was still allowing growth and everything seemed to be on track! Praise the Lord! Claire had not even seemed to notice what her little head had been through. A year later we went for one last follow up appointment and we were given the all clear! She is not expected to have anymore surgery’s or complications. Although things were scary we got through them with lots of prayer and support and they now seem like a distant memory. Claire “bear” Eleanor just becomes more beautiful each day inside and out.